Month: August 2022

Just another meltdown.

I get stressed out about parking.

I start thinking about parking at least a half mile from my destination, depending on where that might be. If it’s somewhere I’ve never been before, I might start stressing about where I’m going to park as soon as I make plans to go there. Even if I’m going home, I am stressed about where I’m going to put my car because there is a place where I like to park but I live in a city and sometimes other people park there.

I don’t know why this is so stressful. It seems like other people are not that concerned. They just decide to go places. They drive there. And then they park. I imagine they don’t think about it much beyond that. That’s my assumption, anyway, based on the fact that I don’t really see anyone else melting down the way I do.

I like going to places with parking lots. That’s easy. I do not like driving deeper into the city where there is mainly street parking. I don’t like having to drive while also scanning the sides of the street for empty spaces while also trying not to annoy the people driving behind me by driving too slowly while also trying to stay in the immediate vicinity of where I’m going. I don’t like pulling over with no warning when I finally see an available spot. I don’t like parallel parking in public with people around who probably aren’t but could potentially be watching and mocking. I don’t know why their opinions of my parking would even matter. Where others would continue to persevere or maybe widen their search area or maybe… honestly I’m not sure what they do, but it stresses me out so much that I will just turn around and go home if it becomes too difficult, and I have done that.

And then when I go home, there’s always the stress over someone possibly being in my space. It’s not technically “my” space but it’s right in front of my house and that’s where I usually go. I start checking as soon as I turn onto my street to see if someone is in my spot. It’s toward the end of the street so, if there’s a long line of cars, it’s sometimes difficult to tell. But as soon as I see for sure, I am either relieved or, if someone is there, immediately filled with rage. It feels like the entirety of the universe is conspiring to convince me I am powerless, I have no agency, I am worthless, I don’t matter. It’s a lot of feelings over a parking space and I hate that I am affected this way but when I see a car in my spot, no amount of soothing self-talk can take away the sting of rage tears I feel burning behind my eyes. Rationally, I know that whoever is parked in my spot does not know me or my car or my feelings, and still it feels like a targeted attack to me, like someone went out of their way to inconvenience me as a personal affront. One particular car has been in my space a lot recently and I even went so far as to ram their car with mine. It wasn’t hard enough to leave a mark but it felt good. And then it felt bad.

Part of the stress at home is the feeling that, if someone takes my space, I then have to take someone else’s space, and, for whatever reason, thinking about how upset I am and them imagining someone else being that upset with me causes me more anxiety than how upset I am for just myself. Sometimes I drive around the block a couple of times and hope that they leave but if I have to park somewhere else, it’s on my mind well after I put the car in Park and exit the vehicle. Sometimes it’s like a low hum of anxiety that runs underneath everything else until I get back in the car and am able to park elsewhere. I look at my car out the window to see if I notice anyone noticing where I’ve parked or gesturing……..

This is exhausting. I am exhausted. I am wondering if I am on the autism spectrum and feeling like I am but also feeling like I am not allowed to say that of myself because it diminishes the experiences of people who are actually autistic. Part of why I am writing this is the fantasy that some authority somewhere will read this as evidence and validate my suspicions. It feels awful to say that, like I’m admitting to something shameful and disgusting. I should not need validation from anyone. In fact, if I got validation at this point, I would probably argue against it because I fear that all I’ve been doing is reenacting harmful stereotypes based on a limited population. But part of why I’m writing this (and also keeping it a secret from almost everyone I know) is that I don’t fit the stereotype of what many neurotypical people think of as autism. Most of the meltdowns I describe happen internally. I feel like I am so full of emotion that I am going to burst sometimes, but I am scared of what will happen or how I’ll be perceived if I let myself lean into those experiences. Even in my most intimate relationships where I can be a little more vulnerable, I am so insecure about every single flare up. Every time I’m upset about something and shout, or groan, or swear, or stomp my feet, or throw something, or slam something, I think that my boyfriend is about to break up with me. I think that only children behave this way. I think I should have more control over my body and my emotions.

This is getting rambly but I think the main point I’m trying to make is that I am never fully comfortable. I am never fully myself. My reactions aren’t always right-sized, and I get stressed out about parking.

I don’t like playing Legos in front of my boyfriend.

He stood over the dining room table surveying my various solid-colored stacks of Lego blocks for a moment and then asked, “what are you doing?”

“I’m organizing them,” I said, hoping that would be enough of an explanation, even though I knew from his tone that he thought how I was going about organizing them was strange.

My birthday was a month and a half ago and he’d gotten me a set and a half of Legos that I had, until today, not touched. I almost wrote “I haven’t given them a second thought,” but I know that’s not technically true. I’ve been thinking about them a lot. And I have been choosing not to introduce Legos into my life for the exact reason I didn’t want to talk to him any more about them. I knew what itch they were going to scratch.

“Okay…” he said, trailing off to imply he found my answer inadequate. I hate when people do this. It’s always because you answered the question they actually asked and not the question they assumed you’d know they also wanted the answer to. I don’t think it’s fair to just expect me know what you want from me, even if I have some educated guesses. So I didn’t say anything. “The question is…” he continued, “why…?”

I had been separating all of the blocks into little piles by color. Then I was going through each color and organizing them by type, stacking the ones that match onto each other so my piles became separate little towers of varying shapes and sizes. Then I started to organize them by shape and size again, taking just the towers of traditional blocks and plugging them into a base by color. His ‘why’ could have meant any number of things so I thought for a minute. He could have been asking about my ultimate plan, which is as-yet to be determine. He may have been asking about my immediate plan, which is detailed and spans the course of several days. I didn’t really want to go into all that. He might have been asking about the motivation to even come up with such a plan, which was also kind of a long explanation of how I’ve been feeling mentally exhausted from this new job and how I feel a need to do something with my body, with my hands, where the rules are inherent and I don’t have to really think too much. But the overlap between that specific need and this specific activity seemed also simple and straightforward so I just answered “because I like it.” I even thought for a minute about how, after all this thinking and analyzing, the short answer I came up with felt like the most honest I could be. What it all comes down to is this makes me happy. It does beg the question, this same question that’s always hanging around the periphery, of why this type of activity makes me happy, but honestly, all the thinking and analyzing and fucking explaining takes away from the actual doing so I just went back to organizing my Legos.

“Alright,” he continued, clearly still not satisfied. “So… Ok, what are you going to do after it’s all organized?”

He wanted my plan. He wanted to know that I’m going to organize each type of block by color and put them in rainbow order. He wanted to know that, tomorrow, I’m going to use a pdf of an inventory of all the types of Legos and a chart of all the colors to put together a database of all possible Lego parts and colors. He wanted to know that I’m going to go through all of the Legos after I’ve organized them and create an inventory of all my Legos. He wanted to know that I’m going to buy individual blocks until I have even numbers of all the colors in the different type of blocks. And probably that wouldn’t be enough because he’d then want to know why I was going to do all of that, some answer other than ‘I like it,’ and the answer is I don’t fucking know. It makes me happy. It flashes the lights in my brain. It checks the boxes. It scratches the itch I knew it was going to scratch when I’ve been thinking about whether or not I want to do this whole fucking thing for months and then he made the decision for me. They were in the house. I just had to dive in. But if he wanted to know why all that was…

“I don’t know,” I said. “I don’t know.” I looked at him for a minute and then said, “I feel like you’re making fun of me.”

“I’m not making fun of you!” he assured me. He thought for a minute and then said “I’m going to let you do your thing.”

I know he wouldn’t intentionally mock me but I figured if I told him that it felt that way, he’d stop asking. And I needed him to stop asking because he’s not going to understand, no matter what questions he asks or how he phrases them. This is not going to make sense to him. And it’s exhausting. There’s no question he can ask that will help him understand why I’m not playing with the Legos the way he would play with the Legos. So maybe I should just play with them in private next time.

I think I’m the problem.

“You can sit with us. We know you’re a part of our group.”

Her tone was flat and she looked me dead in the eyes. I wanted to vomit. But she was right. Why did I think I was invisible? Why do I see myself as an outside observer, having my own experiences in solitude, while everyone else—the collective of which I am not a part—shares an experience that doesn’t include me and is completely different from mine? I looked away.

“Sorry,” I said with a fake laugh, knowing she knew the laugh was fake. “I didn’t see you all when I came in at first.” (Or did I say “you guys”? I am trying to stop saying that phrase because it’s not inclusive but sometimes it slips out.)

I guess it doesn’t matter if I was telling the truth or if she believed me, (and I know it’s “she” because the university had pronoun stickers to put on our name tags and university lanyards when we checked into the orientation this morning,) since I was finished eating anyway, but I stood up, threw my trash away, and joined the rest of my assigned orientation group of transfer students in the one empty seat at the cafeteria lunch table.

It was the first time today I felt like I could relax a little bit. I am trying to go back to school and finish my degree after a long time away. The whole process has been fraught. First, the religious college that has most of my credits didn’t want to release my transcript because of fines I owed for missing chapel. I know I said “first,” implying that there’d be at least a “second,” but I don’t really want to go into the whole process right now. I’ll just say that my day started in bed, feeling like it was going to be a dark day. I let myself stay there too long and then I was stressed out trying to arrive on time for the transfer student orientation, which I understood to be a requirement to register for classes.

I got there later than I wanted but still with plenty of time, only to waste some of it trying to figure out how to get out of the parking garage. Then I wasted more time trying to figure out where I was supposed to go and how to get there.

The morning consisted of a three hour sensory assault: student presenters banging on microphones with their open palms; people coming in late and other people directing those people where to go (even though the program didn’t officially start until 9:15am even though all of the communications previously said presentations would begin “promptly at 9am”); music being played too loudly from YouTube through the speakers while presenters spoke over it; poorly-designed PowerPoint slides with a 3×4 aspect ratio instead of 16×9 and text that was way too small to be legible from the back rows where I was assigned to sit with my group; lapel mics being held way too close to mouths resulting in feedback and chatter from the audience; the stress of potentially being called on to “interact” and having to shout to be heard from the front; presenters presenting from draft view; a cop speaking intimidatingly about potential crime to be wary of on campus and a self-defense class only available to “females”; seats that were too small for my frame with little desks that folded out and cut into my stomach; a bag we were given and had to keep track of all day, which did not actually include any tools with which to take notes of all the information we were told we needed to know; the cognitive load of a full day of information, unsure of which information was the most important to know and which might not be useful to me. This is a small list but suffice it to say, the day was a sensory nightmare.

At lunch we were instructed to go with our OLs, which I took to mean orientation leaders. Ours did not say a word to us or look in our direction so she got up and started walking so me and all the other people with the same number on their name tags got up and followed her through a door and down a hallway and up some stairs and around a corner and down another hallway and then she stopped and said something I couldn’t hear and everyone else got in a line. I didn’t know what they were lining up for so I didn’t go. She looked at me and said “do you need one?” and I said “I don’t know” and she said “did you get yours already?” and I said “I’m not sure” and she said “Get in that line” so I did. Then she left and I surmised that we were getting our student identification cards since they were taking our photos. Our group leader didn’t come back so the photographer told us to go to lunch. We said we didn’t know where that was and he pointed down a hallway and we started walking.

I’m not very good at estimating physical dimensions but I do know the part of the cafeteria with the food vendors was very small. We were shoulder to shoulder. There were five different food lines that all bled into each other and I couldn’t see what kind of food each had and so I just kept walking until I was through and I sat at an empty table by myself.

I decided I didn’t need lunch. Then I thought of my stomach growling and how I hadn’t stopped for breakfast or iced coffee because the communications said masks were mandatory. When I showed up, though, no one was wearing a mask and they had a full breakfast but only hot coffee and I was wearing a mask so I didn’t want to eat. I got up and paced around until I found the exit. I didn’t know if I was going to leave or find the person in charge and ask some questions or make some complaints or… well, I didn’t have a plan. I just needed to get away. The thoughts of the chaotic mass of people and decisions I would just have to make with no information warred against my growling stomach and the lunch ticket in my pocket. I walked all the way back to where we’d started the morning and then, finding that area vacated by anyone having to do with the orientation, I turned around and went back. There were far fewer people at that time and so I got in the shortest line and ordered two heavy slices of pizza and a soda and had to argue with the cashier because she wanted to offer me a whole host of other foods and snacks and drinks because of the balance remaining on my free lunch card even though I told her over and over again that I didn’t want anything else.

So I was stressed out and sat down by myself at a table near my group. Their table looked full and I ate a slice of my pizza while I stared out the window and tried to hear what they were talking about and wondered to myself if I should just get up and go home and texted my partner and looked over the schedule. The other members of the group all sounded like they knew each other as they talked and laughed while they ate their lunches. When they started to talk about how the group leader had ditched us again, I started to focus more on what they were saying. And I started to watch them I guess. And that’s when they noticed me watching and even though I am constantly vigilant about how much physical space I am taking up, I was shocked that they had noticed me at all. Why was I shocked? I am kind of a large person and I am someone who notices everyone and everything. But I was shocked anyway.

So I sat with them. I didn’t say much. I interjected a few times with my frustrations with lack of signage and the very unhelpful student volunteers when it seemed conversationally appropriate. At first I was surprised they had shared so many of my same frustrations with the morning. Everyone seemed to always know what to do and where to go and what questions to ask. But the more I listened, the more I saw how all of their situations were really different than mine and I started to feel left out. The person who had called me out in the first place asked me once if I’d been to campus before and I said I was a bit older and I had a few times but never to these buildings and they rolled their eyes at “older” as though dismissing false modesty or something.

I went with (but didn’t feel part of) the group to sit through a presentation where a man played a video of slides and a voiceover in his voice that he paused every so often to quiz the audience on basics about going to college. I didn’t understand why he didn’t just have the slides and say the things instead of just standing there and sometimes pointing to a slide to reinforce a point or pressing pause to hand out candy to who could remember first how many credits it takes to be full time.

I followed the group to the bowels of the university library where we seated ourselves in a decrepit computer lab. We were expected to register for courses. They were telling us that we had to each take four or five courses. They told us where to get our degree audit but the browser couldn’t display it. There wasn’t a straightforward list of requirements for my degree so I wasn’t sure which classes I needed to take. I also don’t even know if work will pay for the program I got accepted into because it’s not directly related, and I’m not sure how I’ll pay for the degree otherwise.

Someone was walking around handing out handwritten notes of suggested classes for each of us and she handed me mine and it had two classes I’ve already taken and another basic course I know I’ve also taken but wasn’t transferred in so I looked up that course and there weren’t any evening or online courses. I can’t just go to school in the middle of the day. I don’t even work close by. And if I’m this close to a meltdown just because of the orientation, how did I think I was going to manage taking four or five classes on top of working a new job?

Overwhelmed with the feeling that my dreams were so out of reach and that there was no more room in my ears to hear any more speaking or nonsense and no more room in my brain for information which may or may not be important and no more room on my skin for all of this proximity… overwhelmed and feeling like my insides were screaming, I got up and stormed out.

“Already done in there?” One of the student volunteer group leaders sat with one of the employees whose job it was to accept or deny transfer credits. I wasn’t sure which of them had asked but they both watched me as I walked down the hallway toward the exit so I just said “I’m not doing this.” Then I pushed the button for the elevator over and over until it came. When I got in I pushed the lobby button and nothing happened but then I noticed a little torn up post it on the 2 so I pushed that and stormed off the elevator toward what I thought was an exit. It wasn’t. Then I found a desk and a nice looking woman said something nice that I don’t remember or didn’t hear and I said “how do I get out of here?” And she asked something else and I said “how do I get out of here? I want to leave. Where is my car?” And she pointed somewhere and said some directions that I couldn’t understand or I don’t remember and I started walking that way. The lobby I found myself in was a little triggering for me, familiar because it had been the way we’d come but also familiar because it was the same design as courthouses I spent a lot of my childhood in. I looked over the railing from the third floor where it was open and I could see down to the lobby below. I wondered if falling from this height would be lethal and part of me considered jumping so I hurried out of the building and spent another twenty minutes looking for my car.

Is it me? I was keeping a list in my notes app of all the things that I hated about the day but now I’m thinking there might have been nothing wrong with the day and everything wrong with me. There were over 100 other people in the orientation and, to my knowledge, I’m the only one who had to leave. It always seems like everyone else knows what’s going on, they are able to just take things in stride and maybe be a little annoyed but not completely deregulated. I vented on social media and several people offered to help walk me through the process, which feels to me like an acknowledgement that there is something wrong with me that I would need help with this process that literal children navigate every year. I think the problem is me.